I have been very lax at writing but there are never enough hours in a day. Last week I went to the hospital for my last course of chemo. I had my bloods on Wednesday and had the blood taken, then headed up to the Macmillan Suite for my appointment with my Oncologist. He called me into his office and after a brief chat, he told me that NICE have changed the protocol on the chemotherapy and instead of recommending 4 courses of docetaxel, they are recommending only 3, so effectively my chemotherapy is over and had been for almost a month. I was rendered speechless.
This decision was based on research which suggested that the side effects of the drug (including cardio and infection risk) did not warrant the 4th dose as the drug was strong enough within the 3 doses to do its job. The whole thing has left me a little nervous and feeling as though I have been shoved out of the family home after a lifetime of security. I know that I have a direct line back to the hospital in case I need it and I have already made use of that lifeline. I am trying to get my radiotherapy moved forward so I can spend some more time with my mum towards the end of her stay.
I love having my mum here. I still have very little energy on a day to day basis. Mum is a great help all round and is getting on well with the girls (especially little Ruby) Laila can be a challenge at the best of times and requires a little management (as do all 3 year olds Imp sure). I am really going to miss her.
Ruby has her operation scheduled for Friday. The doctors at Kings College Hospital will work their magic and do some keyhole surgery on her feet to lengthen her tendons at the back of her legs. It’s very exciting (because it’s a milestone) and scary at the same time. She will be fine and is growing so quickly at the moment.
Its Laila’s birthday party in 2 weeks time. I’m not sure I have the energy to bake cakes and make loads of food from scratch, so I guess it will be Sainsbury’s finger food and M&S cake all round. I can’t believe my little girl is going to be 3 years old.
I will post more photos after her birthday. My hair is growing back but will be a while before I can bare my crowning glory to the unsuspecting public. Watch this space…
